It takes a village

Been rather busy lately, dealing with Mahler, keeping Strauss in shape with chiro visits and massage, and seeing a lot of my own doctors.

As of today, I am up to 3 physical therapists, a neurologist, a psychologist, a psychiatrist, a pain management specialist, and a general practitioner.  Eight doctors for little old me :-/

This post isn’t going to be terribly long (I have a better, longer post for later this week), in part because I’m tired, in part because I really don’t feel there’s anything particularly interesting about having so many doctors.  Mostly it’s frustrating and disheartening, as the realization hit me that I have more issues than I really wanted to admit.  Even today, my physical therapist mentioned that my eyes don’t track properly when I follow an object in a downward motion.  I have to wonder if that is anything significant, or if I do not track downwards because I have a subconscious worry about bending over/looking down (dizziness issues).  My eyes track fine in every other direction.

I have been referring to myself as a medical enigma as well, as I frequently seem to stump my physicians.  As the physical therapist was testing my balance in various ways, she noted that tests that should be difficult for me were simple, and I showed no issues.  Things that should have been easy for me I had difficulty with.

So, I’m now up to nine doctors, still working on getting disability, and wondering what all this will mean for me as I get older.  Will I ever get better?  Is this all related to my TS?  Is there something else wrong with me?  Will the doctors ever figure out what it is, or will I be stuck wondering for the rest of my life?

There are so many questions, and even with my village of doctors, I am not terribly confident that I will ever get the answers I need.

Flail on,
 – Classical Spazz

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~ by ClassicalSpazz on June 5, 2012.

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